Self-help and information on porphyria
On our website we would like to provide advice seekers with helpful information, tips and contact options for specialists in the field of porphyria in a structured and understandable way. In addition, in the area “ Links ” you can find further information on the topic of porphyria.
Interested parties can also subscribe to our newsletter and receive information about our events in this way.
Apart from that, club members can also use our password-protected area on the Berliner Leberring page. Further information on membership can be found here .
You can also go to https://forum.porphyrie-leberring.de
and under https://www.facebook.com/porphyrie/ Contact with other people affected and we check it out regularly.